Medical data: does patient privacy trump access for research?
Sam Smith, a technology adviser for campaigning organisation Privacy International, says: “I think patients are happy for their medical data from general patient records to be used by bona fide academic researchers in a university if they are asked.
However, he is concerned about the public’s lack of knowledge about NHS England’s plans for care.data: “It’s down to communication and the opt-out. Patients are entitled to opt out, but it’s being buried. NHS England, in the first place, did not want the opt-out at all.