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Content type: Advocacy
In PI’s view the Revised Draft is a significant step back to the already weakened previous draft. Among the many concerns that we highlight in this analysis, we are particularly dismayed by the deletion of a principle on privacy, data protection and confidentiality in Article 3. In all previous drafts, the inclusion of such provision reflected the importance that data protection and privacy plays in any effective, modern public health policies. Failing to keep a specific principle on privacy…
Content type: Advocacy
Our submission focussed on the evolving impacts of (i) automated decision-making, (ii) the digitisation of social protection programmes, (iii) sensitive data-processing and (iv) assistive technologies in the experiences and rights of people with disabilities.
We called on the OHCHR to:
Examine the impact that growing digitisation and the use of new and emerging technologies across sectors has upon the rights of persons with disabilities;
Urge states to ensure that the deployment of digital…
Content type: Advocacy
Privacy International contributed to the UNSR's report by submitting information on the work we have done as well as our Network of partners as we’ve monitored and responded to developments associated with the use of data and technology in the health care sector by governments and companies.
Content type: Advocacy
Privacy International (PI) notes the Bureau’s text of the WHO convention, agreement or other international instrument on pandemic prevention, preparedness and response (“WHO CA+”).
PI has sought to closely follow and engage with the discussions leading up to the draft treaty, despite the significant limitations to civil society participation in the process. In February 2023, we intervened during the briefing organised by the INB bureau and published our comments on the zero draft of the WHO CA…
Content type: Advocacy
PI welcomes the opportunity to engage once again with the mandate by submitting comments, evidence, and recommendations to the UN Special Rapporteur on the right to health, Ms. Tlaleng Mofokeng. We hope that our input will contribute to the forthcoming report, “Digital innovation, technologies and the right to health”.
Technology has contributed significantly to the planning and delivery of health information, services and care. We have seen the use of data and technology across the healthcare…
Content type: Advocacy
Privacy International welcomes the opportunity to provide written input on the working draft of the WHO’s Pandemic prevention, preparedness, and response accord (“WHO CAII”) published on 13 July 2022.
This submission is based on our research and assessment of data-reliant and tech-intensive measures deployed by governments and companies in response to Covid-19 and its aftermath, which documented how these measures impacted people’s fundamental rights and freedoms, including the right to…
Content type: Long Read
For over 20 years with the start of the first use of ICTs in the 1990s, we have seen a digital revolution in the health sector. The Covid-19 pandemic significantly accelerated the digitalisation of the health sector, and it illustrates how fast this uptake can be and what opportunities can emerge; but also, importantly, the risks that it involves.
As we've said many times before, whilst technologies can be part of the solution to tackle some socio-economic and political challenges facing our…
Content type: Long Read
Table of contents
Introduction
The Right to Health
A rights-based approach to providing access to healthcare
What does regulation and governance of data look like in the health sector?
Digital Health
Types of digital initiatives in the health sector
A general lack of a human rights approach to digital health
Why the "digital" makes it all that little bit more complicated
Tech industry and health data exploitation
Why the drive for digital
Introduction
Like in many…
Content type: Long Read
India’s Mother and Child Tracking System (MCTS) is a system that collects vast amounts of data about pregnant people, children, and families. It is an initiative by the Ministry of Health and Family Welfare in India, and was first trialled in 2009. It was then rolled out nation-wide in 2011. Its declared purpose, as stated in the press release accompanying it, was to facilitate “ensuring timely delivery of full spectrum of health care services to pregnant women and children up to 5 years of age…
Content type: Advocacy
On 6 August 2021, the World Health Organisation (WHO) published its technical specifications and implementation guidance for “Digital Documentation of COVID-19 Certificates: Vaccination Status” (DDCC:VS) following months of consultations. As governments around the world are deploying their own Covid-19 certificates, guidance from the global health agency was expected to set a global approach, and one that prioritises public health. As such, we would expect the WHO to identify what these…
Content type: Case Study
As working from home is becoming the new normal, employees’ monitoring becomes the new norm.
Companies around the globe are increasingly using software to monitor how long we spend in front of our computer, what websites we visit and what apps we use, when we type, for how long and how fast, how long our mouse stay inactive — any more than 15 seconds away can shift us from ‘active’ to ‘idle’ — and require us to keep our camera and microphone on at all times. These systems pit us against our…
Content type: Report
SUMMARY
In the UK, local authorities* are looking at people’s social media accounts, such as Facebook, as part of their intelligence gathering and investigation tactics in areas such as council tax payments, children’s services, benefits and monitoring protests and demonstrations.
In some cases, local authorities will go so far as to use such information to make accusations of fraud and withhold urgently needed support from families who are living in extreme poverty.
THE PROBLEM
Since 2011…
Content type: Advocacy
To the Members of the European Parliament and to the Committee on Budgets of the European Parliament
The EU urgently needs to step up and provide assistance to protect the health and safety of people trapped in camps on the Greek islands - not just to protect their welfare, but to contain the virus itself as a matter of global public health.
However, as we detail in the briefing below, the current European Commission proposal for funds allocation is insufficient to ensure the safety of…
Content type: Long Read
This piece was written by Aayush Rathi and Ambika Tandon, who are policy officers at the Centre for Internet and Society (CIS) in India. The piece was originally published on the website Economic Policy Weekly India here.
In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices…
Content type: Advocacy
TEDIC, InternetLab, Derechos Digitales, la Fundación Karisma, Dejusticia, la Asociación por los Derechos Civiles y Privacy International acogen el llamado de la Relatoría Especial sobre Derechos Económicos, Sociales, Culturales y Ambientales (DESCA) de la Comisión Interamericana de Derechos Humanos (CIDH) de enviar información para la elaboración del Informe Anual sobre DESCA del año 2019, que se presentará ante la Organización de los Estados Americanos (OEA) en 2020.
El objeto de este…
Content type: Advocacy
TEDIC, InternetLab, Derechos Digitales, Fundación Karisma, Dejusticia, Asociación por los Derechos Civiles and Privacy International welcome the call made by the Special Rapporteurship on Economic, Social, Cultural and Environmental Rights (ESCER) of the Inter-American Commission on Human Rights (IACHR) to inform the preparation of the Annual Report of the ESCER for the year 2019, which will be presented to the Organization of American States (OAS) during 2020.
This submission aims to outline…
Content type: Advocacy
During its 98th session, from 23 April to 10 May 2019, the UN Committee on the Elimination of Racial Discrimination (CERD) initiated the drafting process of general recommendation n° 36 on preventing and combatting racial profiling.
As part of this process, CERD invited stakeholders, including States, UN and regional human rights mechanisms, UN organisations or specialised agencies, National Human Rights Institutions, Non-Governmental Organisations (NGOs), research…
Content type: Advocacy
The United Nations Special Rapporteur on extreme poverty and human rights, Philip Alston, is preparing a thematic report to the UN General Assembly on the human rights impacts, especially on those living in poverty, of the introduction of digital technologies in the implementation of national social protection systems. The report will be presented to the General Assembly in New York in October 2019.
As part of this process, the Special Rapporteur invited all interested governments, civil…