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Content type: Long Read
24th February 2020
This piece was written by Aayush Rathi and Ambika Tandon, who are policy officers at the Centre for Internet and Society (CIS) in India. The piece was originally published on the website Economic Policy Weekly India here.
In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices…
Content type: Examples
26th March 2020
Because tracking and limiting the movement of those suspected to be carrying COVID-19 carriers has been a factor in flattening the exponential curve of cases in places like Singapore, Taiwan, and South Korea, Professor Marylouise McLaws, a technical advisor to the WHO's Infection Prevention and Control Global Unit and a professor at the University of New South Wales, believes that we should use travellers' smartphones to electronically monitor their compliance with self-isolation orders. …
Content type: Examples
8th April 2020
The World Health Organization will partner with major blockchain and technology companies to launch a distributed ledger-based platform to be dubbed "MiPasa" that it says will facilitate "fully private information sharing between individuals, state authorities, and health institutions" by cross-referencing siloed location and health data to create global insights. The WHO believes the system can ensure patient privacy. MiPasa also expects to host an array of publicly accessible analytics tools…
Content type: Long Read
4th December 2020
In 2019, we exposed the practices of five menstruation apps that were sharing your most intimate data with Facebook and other third parties. We were pleased to see that upon the publication of our research some of them decided to change their practices. But we always knew the road to effective openness, transparency, informed consent and data minimisation would be a long one when it comes to apps, which for the most part make profit from our menstrual cycle and even sometimes one’s desire to…
Content type: Examples
19th October 2020
Manchester-based VST Enterprises is developing a rapid COVID-19 testing kit intended to help restart stadium sporting events. The results of tests, which fans will take the day before the event they wish to attend and provide results within ten minutes, will be stored in VSTE’s V-Health Passport, a secure mobile phone app into which users enter their name, address, date of birth, phone number, and doctor information, plus a scanned official identity document against which the smartphone can…
Content type: Examples
16th April 2020
Oura Rings, which measure body temperature and blood pulse volume to determine heart and respiratory rate and track sleep, are the subject of a national study being jointly conducted by the West Virginia University Rockefeller Neuroscience Institute, WVU Medicine, and Oura Health in hopes it can be used to predict infection and identify infected health workers before they become symptomatic. The rings and their accompanying smartphone app have been issued to physicians, nurses, and other…
Content type: Examples
19th October 2020
Questions have been raised about an irregular process by which the Trump administration awarded a $10.2 million dollar six-month contract to Pittsburgh-based TeleTracking Technologies. TeleTracking has traditionally sold software to help hospitals track patient status; under the new contract it is collecting key data about COVID-19 from US hospitals, bypassing the Centers for Disease Control and Prevention, to which such data is normally reported. The contract was awarded by the Department of…
Content type: Examples
1st April 2020
The UK's National Health Service is collaborating with Palantir to launch a data platform that will track the movement of critical staff and materials; it will, for the first time, give ministers a dashboard showing the first-ever comprehensive view of the entire health care system. The data Palantir gathers into a data store from across the health sector will not include individual patient data; instead, it will include A&E capacity, calls to the NHS 111 hotline, and the number and…
Content type: Examples
22nd April 2020
Palantir and the British AI start-up Faculty are data-mining large volumes of confidential UK patient information to consolidate government databases and build predictive computer models under contract to NHSx, the digital transformation arm of the UK's National Health Service. NHSx said the goal is to give ministers and officials real-time information to show where demand is rising and equipment needs to be deployed, and that the companies involved do not control the data and are not allowed…
Content type: Long Read
7th May 2020
This week saw the release of a coronavirus tracking app within the United Kingdom, initially to be trialled in the Isle of Wight. Privacy International has been following this closely, along with other ‘track and trace’ apps like those seen in over 30 other countries.
The UK’s app is no different. It is a small part of a public health response to this pandemic. As with all the other apps, it is vital that it be integrated with a comprehensive healthcare response, prioritise people, and…
Content type: Long Read
21st September 2020
An edited version of this article was originally published on the EDRi website in September 2020.Introduction
Monopolies, mergers and acquisitions, anti-trust laws. These may seem like tangential or irrelevant issues for privacy and digital rights organisations. But having run our first public petition opposing a big tech merger, we wanted to set out why we think this is an important frontier for people's rights across Europe and indeed across the world.
In June, Google notified the European…
Content type: Examples
24th March 2020
The Thai Tech Startup Association, Department of Disease Control (Ministry of Public Health), Digital Economy Promotion Agency (Ministry of Digital Economy and Society), and National Innovation Agency have developed a questionnaire on an app which as adverised on the Thai Tech Startup Associaiton the questionnaire is designed for people to self-assess if they are in high risk or not. Developed by the Department of Diseases the questionnaire asks a variety of questions related to symptoms and…
Content type: Advocacy
23rd April 2020
Background
In February 2020, the Australian Competition and Consumer Commission (ACCC) commenced an investigation into the proposed acquisition of Fitbit by Google, which was originally announced in November 2019.
Google, whose parent company, Alphabet, in 2018, generated 85% of its $136.22 billion in revenue from delivering targeted advertisements, has a past of competition law infringements in the European Union. Fitbit is a company that produces and sells health tracking technologies and…
Content type: Examples
26th March 2020
The new Singaporean app, TraceTogether, developed by the Government Technology Agency in collaboration with the Ministry of Health was launched on March 20 after eight weeks of development. The app, which can be downloaded by anyone with a Singapore mobile number and a Bluetooth-enabled smartphone, asks users to turn on Bluetooth and location services, and enable push notifications. The app works by exchanging short-distance Bluetooth signals between phones to detect other users within two…
Content type: Advocacy
24th July 2020
Introduction
In February 2020, the Australian Competition and Consumer Commission (ACCC) commenced an investigation into the proposed acquisition of Fitbit by Google, which was originally announced in November 2019.
In March 2020, we made a submission to the ACCC, arguing that the acquisition would very likely have onerous implications for both consumers and markets. We asked the Australian regulator to apply strict scrutiny and not let hisory once again repeat itself. We concluded that the…
Content type: Press release
17th June 2020
On 15 June 2020, Google formally notified the European Commission of its proposed acquisition of Fitbit, enabling them to capture a massive trove of sensitive health data that will expand and entrench its digital dominance. Privacy International is calling on EU regulators to block the merger.
In November 2019, Google announced its plan to acquire Fitbit, a company that produces and sells health tracking technologies and wearables - including smartwatches, health trackers and smart scales -…
Content type: Press release
29th April 2020
Photo by Ashkan Forouzani on Unsplash
Today Privacy International, Big Brother Watch, medConfidential, Foxglove, and Open Rights Group have sent Palantir 10 questions about their work with the UK’s National Health Service (NHS) during the Covid-19 public health crisis and have requested for the contract to be disclosed.
On its website Palantir says that the company has a “culture of open and critical discussion around the implications of [their] technology” but the company have so far…
Content type: Examples
26th March 2020
On March 20, the Peruvian government introduced a website where citizens can retrieve the results of tests for COVID-19. The site asks only for the patient to fill in their National ID number and a simple captcha, making it easy for unauthorised parties to access others' results and put people at risk of exploitation and discrimination.
Source: https://saludconlupa.com/noticias/peru-debilidades-de-plataforma-del-ministerio-de-salud-pueden-exponer-informacion-clinica-de-pacientes-covid-19/…
Content type: News & Analysis
24th June 2020
Name: Google/Fitbit mergerAge: GestatingAppearance: A bit dodgy. One of the world’s biggest tech giants, trying to purchase a company that makes fitness tracking devices, and therefore has huge amounts of our health data.I don’t get it. Basically Google is trying to buy Fitbit. As if Google doesn’t already have enough data about us, it now wants huge amounts of health data too.Oh, Fitbit, that’s that weird little watch-type-thing that people get for Christmas, wear for about a month while they…
Content type: Examples
16th April 2020
An Excel file containing complete data pertaining to patients tested for coronavirus in the cities Quetta and Taftan in the the Balochistan region of Pakistan has been circulating in WhatsApp groups about Balochistan. The file contains information such as names, phone numbers, age address and other identifying information for the patients. The leaked data puts the patients at risk of personal harm and social stigma, even after recovery. Balochistan government officials say the data leaked…
Content type: Examples
12th April 2020
GDPRHub is collecting a list of projects around the world that are using personal data to combat the novel coronavirus. The list is divided into categories such as decentralised contact tracing apps and frameworks; centralised contact tracing systems; lockdown enforcement; self-assessment apps; mapping projects; and statistical analysis. The site also tracks COVID-19-releated data protection issues.
Source: https://gdprhub.eu/index.php?title=Projects_using_personal_data_to_combat_SARS-CoV-2…
Content type: Examples
30th March 2020
Together with Norwegian company Simula the Norwegian Institute of Public Health is developping a voluntary app to track users geolocation and slow the spread of Covid-19. Running in the background, the app will collect GPS and Bluetooth location data and store them on a server for 30 days. If a user is diagnosed with the virus, its location data can be user to trace all the phones that have been in close contact with the person. Authorities will use this data to send an SMS only to those phones…
Content type: Examples
22nd April 2020
North Macedonia is the first country in the Western Balkans to launch a contact-tracing app. The government has stressed that the Bluetooth-based app, StopKorona!, complies with all legal privacy requirements. The app follows a decentralised design, so that users maintain full control over their data, which is deleted after 14 days; if they test positive for the virus they can choose to send their location history to the Ministry of Health so that their contacts can be alerted. The app was…
Content type: Examples
24th July 2020
The New Zealand MP Hamish Walker, a member of the centre-right opposition National party, admitted leaking the details of all the country’s 18 active COVID-19 cases to the media in order to “expose the government’s shortcoming”. Walker said he had been advised that his actions were not illegal. The government has announced an independent inquiry.
Publication: Guardian
Writer: Eleanor Ainge Roy
Content type: Examples
9th April 2020
The company that makes the Natural Cycles women’s fertility app has added n optional service to allow users to track Covid-19 symptoms as well as positive and negative tests. As part of its fertility service, the app already takes each user’s basal body temperature daily; enabling the additional functionality is intended to help understand the spread of the virus and its effects across the world.
Source: https://www.independent.co.uk/life-style/health-and-families/health-news/coronavirus-…
Content type: Examples
26th March 2020
At the MIT Media lab, Ramesh Raskar is leading a team that includes software engineers at companies such as Facebook and Uber to develop the free and open source app Private Kit: Safe Paths. The app is intended to share encrypted information between phones in the network without going through a central authority so that individuals can see if they've come in contact with someone carrying the coronavirus. Anyone who tests positive can choose to share location data with health officials, who can…
Content type: Report
6th February 2020
The changes discussed in this article are based on a second analysis performed in late November, 3 months after the original study Your Mental Health is for Sale and following the exact same methodology. All data collected can be found at the bottom of this page.
Change is possible
Back in September 2019 we published the report Your Mental Health is for Sale exposing how a majority of the top websites related to mental health in France, Germany and the UK share data for advertising purposes.…
Content type: Examples
28th April 2020
Liechtenstein is the first European country to use biometric electronic bracelets to implement a real time coronavirus tracking programme. The bracelet, which sends skin temperature, breathing, and pulse, among other metrics, for analysis in a Swiss lab, is being offered to 5% of the population. The country, which acted early to prevent the epidemic, plans to roll the bracelets out to the entire population by autumn.
Source: https://inews.co.uk/news/health/coronavirus-testing-latest-…
Content type: Examples
16th April 2020
The Kazakhstani ministry of health requires the 8,000 or so Kazakhstani citizens currently under quarantine to use the SmartAstana tracking app, which enables officials to ensure that they remain in isolation. By contrast, for the city of Almaty the ministry of the interior relies on video surveillance technology called Sergek, produced by the local telecommunications firm Korkem Telecom to find people who break quarantine . So far, these two cases are the only examples of the government…
Content type: Call to Action
18th June 2020
Google wants to know everything about you.
It already holds a massive trove of data about you, but by announcing its plans to acquire the health and fitness tracker company Fitbit, it now clearly wants to get its hands on your health too. We don’t think any company should be allowed to accumulate this much intimate information about you. This is why we’re trying to stop its merger with Fitbit.
Google and Fitbit need the European Commission’s approval before they can merge. The merger would…