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Content type: Long Read
10th November 2021
For over 20 years with the start of the first use of ICTs in the 1990s, we have seen a digital revolution in the health sector. The Covid-19 pandemic significantly accelerated the digitalisation of the health sector, and it illustrates how fast this uptake can be and what opportunities can emerge; but also, importantly, the risks that it involves.
As we've said many times before, whilst technologies can be part of the solution to tackle some socio-economic and political challenges facing our…
Content type: Long Read
8th November 2021
Table of contents
Introduction
The Right to Health
A rights-based approach to providing access to healthcare
What does regulation and governance of data look like in the health sector?
Digital Health
Types of digital initiatives in the health sector
A general lack of a human rights approach to digital health
Why the "digital" makes it all that little bit more complicated
Tech industry and health data exploitation
Why the drive for digital
Introduction
Like in many other sectors…
Content type: Long Read
11th August 2021
India’s Mother and Child Tracking System (MCTS) is a system that collects vast amounts of data about pregnant people, children, and families. It is an initiative by the Ministry of Health and Family Welfare in India, and was first trialled in 2009. It was then rolled out nation-wide in 2011. Its declared purpose, as stated in the press release accompanying it, was to facilitate “ensuring timely delivery of full spectrum of health care services to pregnant women and children up to 5 years of age…
Content type: Advocacy
9th August 2021
On 6 August 2021, the World Health Organisation (WHO) published its technical specifications and implementation guidance for “Digital Documentation of COVID-19 Certificates: Vaccination Status” (DDCC:VS) following months of consultations. As governments around the world are deploying their own Covid-19 certificates, guidance from the global health agency was expected to set a global approach, and one that prioritises public health. As such, we would expect the WHO to identify what these…
Content type: News & Analysis
12th May 2021
The Aspen Card - the debit payment card given to asylum seekers that PI has previously exposed as a de facto surveillance tool - will be outsourced to a new company. The contract with Sodexo has come to an end and the company Prepaid Financial Services will be taking over.
Our campaign for transparency in relation to the Aspen Card and how it monitors asylum seekers continues. Not only do we demand clarity from the Home Office [read more here], we believe the new provider, Prepaid Financial…
Content type: Long Read
15th January 2021
This report is available in English.
La mayoría de los documentos nacionales de identidad y demás documentos emitidos por autoridades estatales incluyen un marcador de género. Estos marcadores suelen recibir el nombre de “marcador de sexo” aunque este término no sea preciso. La presencia de dichos marcadores, especialmente en los certificados de nacimiento, promueve el énfasis de nuestra sociedad en el género como criterio de asignación de identidades, roles y responsabilidades sociales. Al…
Content type: Long Read
17th December 2020
As we see Covid-19 vaccination programmes beginning around the world, for the first time since the start of the pandemic there seems to be a light at the end of the tunnel as the fruition of truly unrivalled global scientific efforts has given us hope of saving lives, reopening our societies, and going back to “normal”.
This great moment of hope must not be seen opportunistically as yet another data grab. The deployment of vaccines, and in particular any “immunity passport” or certificate…
Content type: Report
11th September 2020
While identity systems pose grave dangers to the right to privacy, based on the particularities of the design and implementation of the ID system, they can also impact upon other fundamental rights and freedoms upheld by other international human rights instruments including the International Covenant on Civil and Political Right and the International Covenant on Economic, Social and Cultural Rights such as the right to be free from unlawful discrimination, the right to liberty, the right to…
Content type: Explainer
30th July 2020
At first glance, infrared temperature checks would appear to provide much-needed reassurance for people concerned about their own health, as well as that of loved ones and colleagues, as the lockdown is lifted. More people are beginning to travel, and are re-entering offices, airports, and other contained public and private spaces. Thermal imaging cameras are presented as an effective way to detect if someone has one of the symptoms of the coronavirus - a temperature.
However, there is little…
Content type: Explainer
21st July 2020
Definition
An immunity passport (also known as a 'risk-free certificate' or 'immunity certificate') is a credential given to a person who is assumed to be immune from COVID-19 and so protected against re-infection. This 'passport' would give them rights and privileges that other members of the community do not have such as to work or travel.
For Covid-19 this requires a process through which people are reliably tested for immunity and there is a secure process of issuing a document or other…
Content type: Case Study
27th May 2020
As working from home is becoming the new normal, employees’ monitoring becomes the new norm.
Companies around the globe are increasingly using software to monitor how long we spend in front of our computer, what websites we visit and what apps we use, when we type, for how long and how fast, how long our mouse stay inactive — any more than 15 seconds away can shift us from ‘active’ to ‘idle’ — and require us to keep our camera and microphone on at all times. These systems pit us against our…
Content type: Report
24th May 2020
SUMMARY
In the UK, local authorities* are looking at people’s social media accounts, such as Facebook, as part of their intelligence gathering and investigation tactics in areas such as council tax payments, children’s services, benefits and monitoring protests and demonstrations.
In some cases, local authorities will go so far as to use such information to make accusations of fraud and withhold urgently needed support from families who are living in extreme poverty.
THE PROBLEM
Since 2011…
Content type: Long Read
4th May 2020
Coronavirus-related lockdown measures have impacted almost 2.7 billion workers, with some countries seeing unprecedented levels of applications for welfare benefits support.
In response, emergency relief legislation for welfare recipients has been fast-tracked worldwide, from the UK to Brazil. These measures, combined with the growing awareness of Covid-19's differentiated impact along the fault lines of class, race, gender and legal status, rightly seek to address the needs of those most…
Content type: Advocacy
15th April 2020
To the Members of the European Parliament and to the Committee on Budgets of the European Parliament
The EU urgently needs to step up and provide assistance to protect the health and safety of people trapped in camps on the Greek islands - not just to protect their welfare, but to contain the virus itself as a matter of global public health.
However, as we detail in the briefing below, the current European Commission proposal for funds allocation is insufficient to ensure the safety of…
Content type: News & Analysis
10th April 2020
This week International Health Day was marked amidst a global pandemic which has impacted every region in the world. And it gives us a chance to reflect on how tech companies, governments, and international agencies are responding to Covid-19 through the use of data and tech.
All of them have been announcing measures to help contain or respond to the spread of the virus; but too many allow for unprecedented levels of data exploitation with unclear benefits, and raising so many red flags…
Content type: Long Read
24th February 2020
This piece was written by Aayush Rathi and Ambika Tandon, who are policy officers at the Centre for Internet and Society (CIS) in India. The piece was originally published on the website Economic Policy Weekly India here.
In order to bring out certain conceptual and procedural problems with health monitoring in the Indian context, this article posits health monitoring as surveillance and not merely as a “data problem.” Casting a critical feminist lens, the historicity of surveillance practices…
Content type: Advocacy
24th February 2020
TEDIC, InternetLab, Derechos Digitales, la Fundación Karisma, Dejusticia, la Asociación por los Derechos Civiles y Privacy International acogen el llamado de la Relatoría Especial sobre Derechos Económicos, Sociales, Culturales y Ambientales (DESCA) de la Comisión Interamericana de Derechos Humanos (CIDH) de enviar información para la elaboración del Informe Anual sobre DESCA del año 2019, que se presentará ante la Organización de los Estados Americanos (OEA) en 2020.
El objeto de este…
Content type: Advocacy
24th February 2020
TEDIC, InternetLab, Derechos Digitales, Fundación Karisma, Dejusticia, Asociación por los Derechos Civiles and Privacy International welcome the call made by the Special Rapporteurship on Economic, Social, Cultural and Environmental Rights (ESCER) of the Inter-American Commission on Human Rights (IACHR) to inform the preparation of the Annual Report of the ESCER for the year 2019, which will be presented to the Organization of American States (OAS) during 2020.
This submission aims to outline…
Content type: Long Read
16th October 2019
This research is the result of a collaboration between Grace Tillyard, a doctoral researcher in the Media, Communications and Cultural Studies department at Goldsmiths College, London, and Privacy International.
Social Protection Systems in the Digital Age
In the digital age, governments across the world are building technologically integrated programmes to allow citizens to access welfare payments. While smart and digital technologies hold the potential to streamline administrative…
Content type: Examples
16th September 2019
Ahead of the Irish referendum to amend the Constitutions of Ireland to allow the parliament to legislative for abortion which took place in May 2018, Google decided to stop all advertising relating to the referendum on all of its advertising platforms, including AdWords and YouTube.
This followed decisions by Facebook to no longer accept advertising relating to the referendum funded by foreign organisations outside Ireland, and Twitter not allowing any advertising in relation to the…
Content type: Examples
12th August 2019
In September 2018, at least five local English councils had developed or implemented a predictive analytics system incorporating the data of at least 377,000 people with the intention of preventing child abuse. Advocates of these systems argue that they help councils struggling under budget cuts to better target their limited resources. The Hackney and Thurrock councils contracted the private company Xantura to develop a predictive model for them; Newham and Bristol have developed their own…
Content type: Examples
12th August 2019
In October 2018, in response to questions from a committee of MPs, the UK-based Student Loans Company defended its practice of using "public" sources such as Facebook posts and other social media activity as part of the process of approving loans. In one case earlier in the year, a student was told that a parent's £70 Christmas present meant the student did not qualify for a maintenance loan without means testing because it meant the student was not estranged from their family. SLC insisted…
Content type: Examples
12th August 2019
In November 2018 the UK's Equality and Human Rights Commission warned that asylum seekers have been deterred from seeking medical help in Scotland and Wales since the UK government began forcing the English NHS to charge upfront in 2017 and by fears that medical personnel will comply with Home Office orders to forward their data. The commission, along with health charities and the Labour and LibDem political parties, called for the policy to be suspended. The Home Office policy of moving asylum…
Content type: Examples
12th August 2019
In February 2019, the World Food Programme, a United Nations aid agency, announced a five-year, $45 million partnership with the data analytics company Palantir. WFP, the world's largest humanitarian organisation focusing on hunger and food security, hoped that Palantir, better known for partnering with police and surveillance agencies, could help analyse large amounts of data to create new insights from the data WFP collects from the 90 million people in 80 countries to whom it distributes 3…
Content type: Long Read
22nd July 2019
Photo by David Werbrouck on Unsplash
This is an ongoing series about the ways in which those searching for abortion information and procedures are being traced and tracked online. This work is part of a broader programme of work aimed at safeguarding the dignity of people by challenging current power dynamics, and redefining our relationship with governments, companies, and within our own communities. As an enabling right, privacy plays an important role in supporting the exercise of…
Content type: Advocacy
15th July 2019
During its 98th session, from 23 April to 10 May 2019, the UN Committee on the Elimination of Racial Discrimination (CERD) initiated the drafting process of general recommendation n° 36 on preventing and combatting racial profiling.
As part of this process, CERD invited stakeholders, including States, UN and regional human rights mechanisms, UN organisations or specialised agencies, National Human Rights Institutions, Non-Governmental Organisations (NGOs), research institutions, and…
Content type: Examples
12th July 2019
Absher, an online platform and mobile phone app created by the Saudi Arabian government, can allow men to restrict women’s ability to travel, live in Saudi Arabia, or access government services. This app, which is available in the Google and Apple app stores, supports and enables the discriminatory male guardianship system in Saudi Arabia and violations of womens’ rights, including the right to leave and return to one’s own country. Because women in Saudi Arabia are required to have a male…
Content type: News & Analysis
10th July 2019
Today, the British Health Secretary Matt Hancock announced a partnership between the NHS and Amazon to use the NHS’s website content as the source for the answer given to medical question, such as “Alexa, how do I treat a migraine?”
While we welcome Amazon’s use of a trusted source of information for medical queries, we are however extremely concerned about the nature and the implications of this partnership. Amazon is a company with a worrying track record when it comes to the way they…
Content type: Advocacy
27th May 2019
The United Nations Special Rapporteur on extreme poverty and human rights, Philip Alston, is preparing a thematic report to the UN General Assembly on the human rights impacts, especially on those living in poverty, of the introduction of digital technologies in the implementation of national social protection systems. The report will be presented to the General Assembly in New York in October 2019.
As part of this process, the Special Rapporteur invited all interested governments, civil…
Content type: Examples
7th May 2019
In Israel, the National Insurance Institute – in charge of granting benefits – eventually dropped a tender that had caused outrage in the country after being uncovered by Haaretz and Channel 13. The tender revealed the NII was trying to collect online data about benefits claimants – including from social media – to detect cases of frauds. The tender used wheelchair users as an example, suggesting that finding pictures of alleged wheelchair users using bikes on social media could contribute to…